Learn More at the Following Websites
- You can learn more about the symptoms and outcome of the disease, along with medical terms at
The Association for Frontotemporal Degeneration - For more information about being a young caregiver, visit
www.youngcarers.net
Downloadable Resources
- For children too young to read the information on this website, consider this activity book, designed for children aged 5 to 9. The book may be best understood when an older sibling or parent can look at it with the child.
Activity book - For your easy reference and access, here is a sample letter that you may share with your loved one's physician to help prevent problems if your loved one has become irresponsible with money. The doctor can write it on his or her letterhead, and your family members may give it to someone at your bank.
Financial letter - This is a sample letter that you may share with your loved one's physician to help prevent problems if your loved one is uncooperative with security or customs. The doctor can write it on his or her letterhead, and you may carry it while traveling.
Customs letter - Here is a sample letter that you may share with your loved one's physician to help prevent problems in almost any arena. The doctor can write it on his or her letterhead, and you may share it with the police, employers, school officials, or anyone else who might need to understand your situation.
To Whom it May Concern letter - If you want suggestions for interacting and sharing meaningful activities with your loved one, please take a look at this 18-page document from experts in the field.
Montessori Activities - For a functional model to help guide your loved one through a daily routine, please view this Daily Personal Agenda. It allows you to cut and staple pages for your loved one's easy use.
Sample Daytimer
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about Dementia" Advice from Kids Who Understand What Psychologists Say about You How to Get Help! Learn More about Dementia & Downloadable Resources
"Doctors Don't Know Anythingabout Dementia" Advice from Kids Who Understand What Psychologists Say about You How to Get Help! Learn More about Dementia & Downloadable Resources